Tag: illness

IM BACK!!!!

So here I am writing again. Its 2.14am, and I’m due at work I’m under 5 hours.

My nights have been like this a lot lately. I don’t really sleep anymore. I just have this blurry feeling in my head and a faint buzzing.

Is this what insomnia feels like. Or can I just not sleep.

Always a lot going on in my life. I think ‘good luck’ has up and fucked off. Listened to his evil twin ‘bad luck’ and just swapped places.

Last week was hard and my endometriosis kicked my butt. took morphine for the first time at my new job. It was worse then it has been in a while. to the point where my jeans touching the left pelvic area even for a split second in the bathroom made me drop to the floor and hit my head.

But I made it thru the day with just one person noticing.

Is it wrong that I’m getting annoyed at people being fussed around cause they have a headache or something similar. when I’m sitting in agony knowing I should be in the hospital. But that’s my fault as I don’t tell anyone.

I say I don’t want sympathy but a simple are u ok do you need a hug would be nice.

Just to have some one hold me and tell me it will be over soon and the pain will subside. For me to fall asleep in there arms. I miss that. been years since anyone cared about me enough. Even friends are not like that.

I haven’t had anymore suicide attempts although I did self harm. Which I hate myself for, some times its the only way to release the stress, pain and anger I feel inside. Do others have issues coping like I do? Whats wrong with me that I cant cope?

I have seen mental health doctors before but they all say I’m fine. CLEARLY IM NOT.

I was even taken into a mental health unit for 2 weeks. where I was diagnosed with Manic Depression, most commonly know as Bipolar. I was later then rediagnosed with Borderline personality disorder. I was told it cant be bipolar because I don’t run down the street naked.

But I am on no medication and don’t see councillors. I choose not to see them because all they wanna do is talk about my past. Which I have worked so hard to block out. They start me talking then the nightmares start again. I cant deal with that. Right now they are few and far between. But when I start speaking about them they are every night.

I still see random things, like shadows and spiders that are not there. but they said as long as I don’t here voices I am fine.

I have had the heart monitor fitted and see the heart specialist on Friday. And see my pre op doctor on Thursday regarding my endo op.

I’m not sure how I will handle the operation for Endo. It is to take out my ovaries. I’m scared it will send me into a spiral. When I had my womb removed it took over a year to handle it emotionally and I still have moments now where I struggle and cry. To have babies again. I cant even look at the facebook memories of my kids when they were young. its silly and I cant talk to anyone including councillors as I always get the same response. “you have 2 kids already u should be happy, some people cant have kids”

It makes me even more upset, as I have no one to discuss it with.

I barely see my kids atm and I hate it. I have to work so that they can have a good up bringing but I just seem to get on more debt. I get home at about 6 and they go bed around 7. At weekends there nan who hates me for being ill and working. She thinks I cant be as ill as I have said cause she sits on her arse so how can I work. So she has them on the Friday night. I see my kids for about 2 days a week. I hate it but money has to be earnt. I hate that I cant take them places.

The guilt I feel is unbelievable. hope they know I love them.

These are the times I resent people who can just ask mummy and daddy for help. I have no cooker atm but have no money to get one. I’m even selling naked pics of me online cause we need money so bad. But I don’t have family. I have no one to talk to and fall back on for support. Its just me dealing with all this.

I was told by some one at work I’m the most positive person there. I’m not I can just fake it. They don’t know I’m dying inside and holding back tears.

Will things ever change. I don’t think I’m a bad person, I work hard and try my best. I try to be nice to everyone. So when do I get a break.

 

The Truth about Endometriosis

I was diagnosed in 2006 at the age of 22. But the pain started years before.

This is going to go in depth so if you are squeamish this might not be the blog for you.

It all started at 14 when I got my period. The pain was horrendous and the bleeding was scary. I bleed for 11 days and went through 3 backs of pads. I was worried and scared but was told it was normal.

The periods carried on this way to the extent I was in a lesson and waited til everyone had left because I had bleed through onto the seat enough to make a puddle. But once again I was told this was normal.

I was a shy girl and did not know how to talk about things and even though I had 5 sisters was not close to any of them, so didn’t discuss anything with them. I was a lonely child.

At 16 I got pregnant and lost my baby at 4 months. It was devastating but was told it happens to everyone. Since then I have misscarragied 5 more babies due to endometriosis. They were all bad and scary.

Although one stands out. I got cramps and it wasn’t endo didn’t think nothing of it and didn’t know I was pregnant at the time. Then the bleeding started but this time it was different. I had misscarriaged before so I kinda knew. I went to the doctors and they confirmed the miscarriage although I had not passed all the tissue so was give a pill to help me pass the rest. The second pill i had to take at the hospital. It was heart breaking.

I arrived at the hospital and was taken to the maternity ward and put in a side room. I could hear women in labour and babies crying. The pain got worse and worse and I was alone. I passed the baby and the nurse asked me if I wanted to look. Who asks that question I was not far gone so my baby was more blood then anything else. I told her something didn’t feel right. But 10 mins after I miscarried she sent me home. I walked home alone that night. It was around 10 at night.

I was going to a car show and felt fine just slight back ache. Whilst there the craps started again, I managed to hide it and on the way home I asked the friend drive to take it easy as pain was bad. he was a dick and thought it was funny to go the route with all the speed bumps. By the time I got back to my area I asked him to drop me off at the hospital. I was in agony but no one came with me. I told the receptionist what was happening, by this time I was bleeding all down my legs and informed them this and told to just sit down. I called a friend to bring me pads and I was changing all the time. The waiting room was packed and there was blood all over me. I finally got taken in and was told until they confirm I was actually miscarriaging they would not give me pain meds. I was made to walk to the toilets every time I felt I was bleeding or passing my baby. They even brought in gas and air for me as soon as it was confirmed. The pain stopped after I passed large tissue. I had a scan to reveal that it still wasn’t over. A week later they called me in for a DNC.

Although all miscarriages are bad that’s the one that haunts me the most.

There are so many lies about endometriosis. I fell for one of them. The one that says a hysterectomy cures Endo. I had a total hysterectomy 2 years ago yesterday and its been my biggest regret. I have 2 gorgeous babies and would not change them for the world. But having the choice taken away to have more is devastating.

I have had 11 operations due to endometriosis.

When I had my first operation to diagnose me my partner at the time did not believe me and told me if they find nothing he is leaving me.

Everything is worse now. Sex is painful, shitting is painful, I swell up 2 dress sizes in minutes, I cant exercise much, lost multiple jobs, have more operations coming. The pain is unbearable some days to the point I throw up and pass out.

The part that is the worse is that people don’t believe you. They don’t understand that you are in agony but have to carry on your day anyway. I have had people not believe I have had operations cause I bounce back fast. What they don’t understand is the pain from the operations including the hysterectomy is nothing compared to endometriosis pain.

I have had doctors say I go to hospital to get meds. I go to hospital when its got to the point that the morphine I have at home is not working anymore and im in so much pain I cant cope. I have had ambulances refuse to take me to hospital because its an on going condition I should know the signs.

That’s a picture of my belly swollen leaving me in pain and unable to move much.

Endometriosis is a terrible disease and barely anyone knows about it