I think I spelt the title wrong.
But maybe I can be forgiven after the last few days.
I went to Wales last weekend as our first family holiday. Was so nice and gorgeous there. We went for my daughters 4th birthday.
Then on Monday after working for half a day I went to see Lukas Graham in concert. His voice is amazing live.
The reason I am writing today and may ramble a little as on a lot of Morphine right now is because since Sunday I have been in agony. It has got to the point I am unable to walk properly, need help to the toilet and cant do anything for myself.
Now my work don’t know how ill I am. So yesterday instead of my usual suit trousers I wear to work I figured I could get away with black jeans. This did not go down well and was given a warning. How do I explain to my two male bosses that when I get on pain my tummy swells to the size of a 6 month pregnant women and my suit trousers will rip. Today I have had to buy a size 16 pair of trousers which is 2 sizes bigger then what I am and a belt.
Today the pain got horrendous and I dialled the 111 service as after 83 calls to the doctor I could not get an appointment.
The paramedic that I spoke to on the phone was great he knew what endo was he understood about it all. He called an ambulance. This is where it all turnt bad. After a 50 min wait 3 paramedics turnt up. Now one of them was great he knew exactly what endo was to the point he was asking questions the specialist does. The other two where not so nice here is a few things that were said to me.
- if you have the meds why call us.
- doctors can deal with this
- your blood pressure and pulse are fine
- why do I not just go to bed
- if you collapse don’t call us back here.
Well heres my argument. My meds are not working I don’t call them for the fun of it. Doctors wont deal with the pain when its this bad as they can prescribe anymore then I already have. My blood pressure is naturally low to the point when I do go to hospital they wake me up in the night to walk around to raise it. My pulse is naturally sat around 51. which is really low. when they checked me my blood pressure was 128/91. Which for most people is normal but not for me. The pulse rate was 89 now considering its usually 51 that’s really high for me to. Next I have tried being in bed, ive tried a bath, ive tried sitting standing, falling and laying its not helping and im unable to sleep. The next one really annoyed me. So if I collapse no one can call an ambulance for me.
So right now I am sat downstairs dreading the next tine I need to go loo, on the most amount of meds I can take still in agony.
I would not wish this illness on anyone. The NHS need to study about Endometriosis its a common illness.
